Gabby's Daddy

10:20 PM 10 Comments »



Hi everyone. I'm Nguyen, Gabby's dad and I felt it was my time to blog so you all can get a little feel for our whole entire family and not just the lies upon lies that Sheree spreads through this venomous blog (just kidding). Well let me start out by telling you a little about myself. I was born into a wonderful loving family and blessed with two of the best parents ever. I have two older brothers and an older sister who live nearby. I love them very much also. I grew up in a pretty normal Vietnamese household except my parents were exceptionally open minded compared to most of the older people in the culture. They never minded that most of my friends weren't Vietnamese and always encouraged me to do what made me happy. Well a few years ago I met the girl of my dreams and her name is Sheree. I remember thinking to myself after our first date that there is nobody out there more beautiful than this woman and I still think the same thing today. We dated like 3 days and we found out she was pregnant with our son Cameron. I always knew I wanted to marry her so it was very happy news to me. I always thought what could possibly look better than me. Well of course, me but half white. And that is what Cameron looks like, me but half white.
I have always been a realist my whole life. I'm a very very realistic person and I dont try control things that are out of my control. For example I'm not the guy who goes to a car dealership and leaves telling all my friends that I ripped off the dealership. Please people, a car dealership is not selling you a car if they're losing money on it. Or another example of me being a realist is I don't go into asian restaurants expecting good service because thats not what asian people do, they're good at cooking food and collecting money, not communicating. I have a pretty dry sense of humor that amuses some people, just not my wife. I am not a religious person at all but I don't consider myself an atheist either because I believe there is a God out there, just not the same one that people kill eachother over. So when we found out that Gabby was born with down syndrome, I didn't play the "God Card". I didn't say to myself God did this for a good reason because why would God want a child to be born with heart problems and learning disabilities. I just took it as something that happens to people randomly and I was this random person. Just like anyone else would have been, I was confused, scared, angry and ran through a whole roller coaster of emotions when we were told of the news. I just knew though that giving up was way too easy and my parents didn't raise no quitter. I can't wait to be a father to her and provide her with a wonderful life.
I think most people wouldn't want more kids with all the extra attention needed to take care of a down syndrome baby, but I'm already thinking about building a whole entire entourage of brothers and sisters to surround Gabby with so the first kid that makes fun of her will get laid out and carted off on a stretcher. Again, it's only been one week since she was born so we'll see how I follow through on this. Bye everyone, more on my life next time. Thank You for wasting your precious time reading my entry.

HOT HOT HOT! ***updated***

9:03 AM 6 Comments »






Ughh...this weather is not zesty. It is over 100 and has been the past couple of days. I promised Cam we would go buy him a little kiddie pool with a slide today so he can play. He is pretty pumped! Of course, I will probably die of heat exhaustion but as long as the kid is happy, that's all that matters!




I called the nursery this morning and Gabby's nurse informed me that they took her nasal cannula out, woohoo! She is on room oxygen now and they are just watching her. Usually with the cannula in, her saturation levels range between 96-99. She said without it she is at about 93-94 so that is great. Hopefully she will get that stabilized and we can be tube free! I can't wait to go to the nursery tonight and take pics of her without that tube and tape all over her pretty princess face!






And since I don't have any newish pics...here are some pics of my little man last year at this time...
update:
I spoke with gabby's on call pediatrician today and he informed me that they will be observing her for 24 hours and if all goes well, she will be coming home this weekend! WOOHOO! This is what I have assumed all along but have been trying not to get my hopes up! I am thinking it may be tomorrow but I suppose it could be Sunday! Anyway, just wanted to let you all know my princess is coming home! :)
PS- Happy 1 week birthday Gabby!

returning to normalcy....kinda

12:16 PM 12 Comments »
Nguyen is finally getting back to his semi normal work schedule which he desperately needed to do for himself. We were talking about how it is so weird how the little things we used to do everyday seem so insignificant now. I don't watch tv or visit my favorite gossip websites anymore. Nguyen never watches basketball or plays video games, whereas that was his favorite thing to pass the time before. I think we both "woke up" in a sense and are learning to appreciate the things in life that really matter. It is amazing how it takes something so incredible to open your eyes and to realize how selfish we all are.



We went to visit the princess this morning and drop off some breakfast and lunch for her :) She was wide eyed when we got there which was nice. She gets more and more beautiful everyday. The doctor saw me ooohing and ahhhing over her so he came out to give me an update. She is doing AWESOME! They will be weaning her down to room oxygen today. They stopped the phototherapy for the jaundice last night and a lot of times the levels will rise up a bit after it is stopped but hers kept going down, so that is fantastic!

He didn't specifically say it, but I am guessing that if she does well coming down to room oxygen, they will just monitor her all day tomorrow and hopefully she will be home on SATURDAY!! Again, trying not to get my hopes up, but she will definitely be home soon. I can't wait! I can't believe she will be a week old tomorrow. Crazy.

note: A friend of a friend had this poem posted on her site and I really liked it. I like to believe Nguyen and I were handpicked for Gabby :)










God Chooses A Mom For A Disabled Child
By Erma Bombeck





Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, Nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen? Somehow I visualize God hovering over the Earth selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger.




"Armstong, Beth; son; patron saint, Matthew.
"Forrest, Marjorie; daughter; patron saint, Cecelia.
"Rudlege, Carrie; twins; patron saint…give her Gerald. He’s used to profanity."




Finally, he passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one, God? She’s so happy."
"Exactly," smiles God. "Could I give a handicapped child a mother who does not know laughter? That would be cruel"
"But has she patience?" Ask the angel.
"I don’t want her to have too much patience or she will drown in self-pity and despair. Once the shock and resentment wears off, she’ll handle it. I watched her today. She has that feeling of self and independence. She’ll have to teach the child to live in her world and that’s not going to be easy."
"But, Lord, I don’t think she even believes in you."
God smiles. "No matter, I can fix that. This one is perfect. She has just enough selfishness"
The Angel gasps. "Selfishness? Is that a virtue?"
God nods. "If she can’t separate herself from the child occasionally, she’ll never survive. Yes, there is a woman I will bless with a child less than perfect. She doesn’t realize it yet, but she is to be envied. She will never take for granted a ‘spoken word.’ She will never consider a ‘step’ ordinary. When her child says ‘Momma’ for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her blind child, she will see as few people ever see my creations.
"I will permit her to see clearly the things I see --- ignorance, cruelty, prejudice --- and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side.."
"And what about her patron saint?" asks the angel, his pen poised in mid air.
God smiles. "A mirror will suffice."

Welcome to Holland!

2:32 PM 19 Comments »
Welcome To Hollandby Emily Pearl Kingsley


I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this . . . When you're going to have a baby,
it's like planning a fabulous vacation trip - to
Italy.
.
You buy a bunch of guidebooks and
make your wonderful plans. The Coliseum, the Michalangelo David, the gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes and says, "Welcome to Holland." "Holland?" you say. "What do you mean Holland? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place full of pestilence, famine and disease. It's just a different place.
So you go out and buy new guidebooks.
And you must learn a whole new language.
And you will meet a whole new group of people you would never have met. It's just a different place.It's slower paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around, and you begin to notice that Holland has windmills, Holland has tulips, Holland even has Rembrandts. But everyone you know is busy coming and going from Italy, and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say,
.
"Yes, that's where I was supposed to go. That's what I had planned." The pain of that will never go away, because the loss of that dream is a very significant loss. But if you spend your life mourning the fact that you didn't get to Italy, you will never be free to enjoy the very special, very lovely things about Holland.
How awesome is that?! Thank you Dani for sending me that beautiful analogy...I know I will love Holland!


I met with Dr. Riverra today, a pediatric cardiologist. He drew me a picture of what's going on in the princess's heart. I nodded my head and acted like I knew what he was talking about (yeah right) but wow, I really need to start learning my medical terminology! Anyway, basically she has three holes in her heart. One is a totally normal one that ALL babies are born with that should close on it's own sometime soon. The other two holes are very typical in people with down syndrome and just need to be watched. She may or may not need surgery. It's just a wait and see kind of thing. IF she does need surgery, we can do it around six months of age or even later...just depends. And if that is the case, she will have the procedure done at UC San Francisco.


Dr. Riverra also told me about how much has changed in the way we treat down syndrome now as opposed to 20 years ago. There are so many therapies she can be involoved with and so much she will be able to do. He even told me about a person with down syndrome in Florida who was Valedictorian in at FSU! How awesome...


So anyway, I have high hopes and know Gabby will be just fine and have a great life! Please just keep her in your thoughts and pray she will not need surgery!


Love and kisses to you all!


xoxo

just some pics from our evening visit!

9:55 PM 27 Comments »
Everyone loves her pics and keeps asking for more so here are some to hold you over!


She was tanning when we got there...











But we just had to hold and interrupt her for a few minutes!





























my sweet girl...




















and my favorite of the evening

Update on Gabby- Tuesday, May 13, 2008

3:03 PM 10 Comments »



















Yesterday we got the results from Gabby's ECHO. They see a couple of smallish holes in her heart. I asked if they were small enough to heal on their own because it is somewhat common for newborns to have holes in their hearts and, usually, they fix themselves if they are small enough. He says he thinks although they are not huge, they may be a tad to big to heal on their own so she may or may not need surgery at some point. I had already done my investigating before I got this news, so I kinda expected him to tell me my baby was going to need heart surgery. Pretty crappy, but what can you do? So, he said the holes pose no threat right now and that will NOT keep her from coing home anytime soon...the ONLY thing is this darn oxygen issue! So I got off the phone, relayed the message to nguyen and had another good cry. We are pretty sick of crying.










We went and saw her shortly after that phone call and I went in first while Nguyen and cam waited outside. Cameron had still not seen his baby sister and was pretty confused about the whole situation. I was the only one in the nursery and the nurse asked if Cam had seen his baby sister yet. I told her no and so she said he could come in. I was sooo happy. I have been feeling so bad making him wait out there while mommy and daddy go in but he has to stay out. So he came in grinning from ear to ear. He told her "Hi Gabby! I a big brother!" It was too sweet. He told her he loved her and gave her a smooch. :)










Today has been a really good day. I have been a dairy for the pasty 24 hours as my milk has come in and I have to pump since miss priss is in the nursery still :)










This morning, Nguyen, cameron and I went to the hospital to deliver Gabby's breakfast. The nurse had called last night and informed me that she would be under phototherapy lights due to a little bit of jaundice but I was expecting that so it wasn't neccessarily bad news to me. Anyway, when we got there, she was sun tanning so we didn't want to have to take her out from under the lights so we just kinda said hello and let her know we were there.










While I was talking to her, the pediatrician came out to touch base with me. He said she is doing very well and they have decreased her oxygen down to 50% which is great because she is tolerating that very well! He also said that her jaundice has gone down quite a bit from last night and hopefully tomorrow she will come out from under the lights. He informed me that they do know what was causing the oxygenation issues but honestly, it was a bunch of doctor talk and I really don't recall "what" it is that is/was causing the issue but he said it's a normal newborn thing...not a down syndrome thing and it should clear up soon. He says they will continue to wean her from the oxygen and get her to where she no longer requires it. At that point she can come home, YAY! I asked him when he thought that might be and he said they may try and cut the oxygen all the way out in the next two days and then spend one day observing her. SO, best case scenario, she can come home in a few days. I am not getting my heart set on that though. I would hate to be dissapointed AGAIN.










The genetisist just called and she is a very sweet lady. She told me she had a chance to play with gabby yesterday and based on the pediatricians notes she tends to agree with what they are saying. She went on to tell me I had a GREAT attitude about it to which I had to admit that today is "just a good day...yesterday was a different story." She said that is okay..it's normal to have good and bad days. She reassured me that Gabby is going to be a wonderful little girl who will ride her bike and play the piano if she wants to. It's just that it will be on her own terms. It was nice to hear.










So anyway, that's all of the updates I have so far. We will go back again this evening and hopefully get a chance to feed her ourselves and spend more than five minutes. Nguyen's sister offered to watch cameron so it will be one of the very few times Nguyen and I can actually be in the same room with her!










I will continue to update you all on her progress. This is going to be QUITE the journey but we know we have all of the love and support we could ever ask for!

Sunday, May 11th 2008

12:35 PM 1 Comment »


Mother's Day: I finally got my first real nights rest the night before and it was nice. Cameron and Nguyen went out before I got up and got Donuts and coffee :)




My mom came over to visit and so I could give her her Mother's Day gift (Rachael Ray Furi Knives, woohoo!) After Nguyen and Cam got back from Starbucks and the donut shop, they gave me my present... How spoiled am I? I have always wanted pearls and Nguyen took notice! He is the BEST!
Shortly after we got a call from the on call pediatrician to give us an "update." He went on and on for about twenty minutes about how Gabby showed signs of a "stressed" baby in the womb and that she was displaying pretty typical behaviors of that, etc... And then he dropped the bomb. "Oh and also, not to scare you but I hear she looks just like her dad and her brother...is that right?" To which I respond with, yeah she kinda does. And he says "okay good because we were looking and one of the things that came up was down syndrome because of the way her eyes looked." My heart just sank because just the day before as I was holding her, I had the very same thought. I quickly dismissed it though because she looked different the next time I held her and she continues to look different every time I see her.
So, he goes on about how she has the eyes of a person with down syndrome and also her ears are set a little low on her head but he measured them and they were within range of "normal." "The only other thing we found that could point to DS is that she has what is called a "Simian Crease" on her hand." (Most people have three creases on their palms. A simian crease is one crease that goes straight across and although they are very prominent in people with DS, you can also have them and NOT have DS.) So he continued to tell me they are ordering a blood test to get a chromosome analysis done to see what's up but the results would take about a week.
Getting off of the phone and relaying that message to Nguyen and my mom was pretty difficult but I remained hopeful and optimistic. I decided to do a google search and see what I could come up with. We found out that 13% of asians have the simian line and that was GREAT news to me. At that point, I felt like our chances of Gabby having DS were low and we were all going to be just fine.
Later, after cam woke up from his nap, we took a trip out to the hospital to see our princess. My mom and I were in the nursery and Nguyen was outside waiting for his turn with cam. The new on call pedi came over along with a social worker and said she wanted to talk to us. It sounded scary so I sent my mom to get Nguyen.
Immediately she pulls out a sheet she printed up with ALL of the characterisitcs she felt Gabby possessed that pointed her towards a diagnosis of down syndrome. She said she felt about 90% certain it WAS down syndrome. That was the most painful sentence I have ever had to listen to. Nguyen and I both cried right there in the nursery but they were very comforting and reassured us that there were plenty of awesome resources for us and everything was going to work out for us.
We went home and cried for the rest of the day. It was/is just so shocking. We went in waves of emotions...one minute feeling the weight of the world on our shoulders and the next feeling like this was the best thing that could have ever happened to us because she was going to bring our entire fanily closer and we would love like we never thought possible.
SO, it was a pretty rough mother's day but we got through it and we will continue to get through each day and hopefully, it will get easier and easier.