Do people with Down syndrome suffer?

9:56 AM Posted In , 12 Comments »

I came across this on a forum I read and thought it was worth sharing...





Do People With Down syndrome Suffer?

By Kristy Colvin


Yesterday I received an email alert that brought up a discussion of Down syndrome. AskMen.com poses the question, "Would you keep a baby with Down syndrome? Does a person with Down syndrome really suffer in today's society? Should a test for this disorder even be an option for pregnant women?"


The responders of this debate come from all sides. The one question that struck me hard was "Does a person with Down syndrome really suffer in today's society?"


My answer is 'yes', but not the way most people who do not have a child with Down syndrome or mosaic Down syndrome think. A person with Down syndrome or mosaic Down syndrome does suffer.

They suffer from ignorance. Not their own-But the world's.

They suffer from discrimination. Not because they can not discriminate the differences between others-But because the world discriminates against them.

They suffer from communication problems. Not because they can not communicate- But because the world will not listenand communicate with them.

They suffer from misunderstanding. Not because they don't understand-But because the world refuses to understand them.

They suffer from learning problems. Not because they can not learn-But because the world believes they are not teachable.

They suffer from the inability to make friendships. Not because they are unable to be a friend-But because the world teaches their children to not associate with them.


Do people with Down syndrome suffer? Yes, unfortunately they do. But only because the world sees them as so incredibly different from themselves. If the world would stop and get to know-really know-someone with Down syndrome, they they would realize that they are no different than anyone else! Some may talk a little different, but that doesn't mean they don't know what they are saying! It just means they have trouble forming the words. Some may learn a little different, but that doesn't mean they can not learn! It means that like every single other person in the world, they learn at their own pace. Some may look a little different, but that doesn't mean something is "wrong"with them. Even identical twins look a little different from one another.


My son has mosaic Down syndrome. He is 22 years old. He likes RPG video games. He likes YouTube. He likes horror movies. He LOVES girls. He plans to have a family. He plans to have a career in computer graphics. He is a great writer and hopes to be published one day. He wants to travel. He would love to go to Japan. He likes hanging out with his friends. How different is he really to any other 22 year old?


This goes back to my statement years ago that became my Trademark:


The Only Handicap A Person Has Are The People Around Them!


The only thing people with Down syndrome or mosaic Down syndrome suffer from are the people in the world who do not believe they should be here in the first place.
___________________________________________________________________
So true. Anyway, just thought I would share.
I was talking with my housekeeper the other day. She is a very sweet woman. I give her all of our outgrown clothing, toys, and other things we don't need anymore and she sends them to Mexico. She told me last month that she was getting ready to send a big shipment to her country for the holidays, so if I had anything for her, she would appreciate it. Of course we ALWAYS have things for her to take off of our hands, and I am grateful that she is making sure they get to people who could really use them.
Last week she thanked me for the bags I had given her the week prior. She said "I like to send a lot of these things to special needs shelters in my country." At first, I thought maybe she knew I had a child with special needs, but then I realized I had never told her. Did she just know? I then told her, "you know my daughter has Down syndrome." And she looked at me with bright eyes as I said "did you know that?" To which she replied, "no, I did not...did you know I have twins? Both of them are disabled. My son is autistic, and my daughter is legally blind." I was shocked and I imediately felt a bond between us...one that wasn't there before.
We talked for a few more minutes about our children. She said something to me that I have been thinking about quite a bit lately. She said, "you know, really...we're ALL disabled." I looked at her with confusion in my eyes. She said, "think about it...for these children to have made it through a pregnancy, they have to be pretty strong individuals don't you think?" I agreed.
When you really think about it, the odds are stacked against these miracles from the very beginning. For something so small to push forward and fight to withstand a pregnancy and make it through to birth, there has to be some sort of super-fighting powers in them. These people fight to make it in this world, and they always will. What did I do to get here? There were no odds stacked up against me. In a way, I am much more "disabled" than my daughter. She is a fighter...she always will be. And me...well, I'm just lucky enough to be her audience and biggest fan along the way!

Santa 2008

8:37 AM Posted In , , 8 Comments »
Yesterday we had our holiday portraits done (remember the ones we had to cancel.) And since we were in the Ville' we decided to have a peek at the newly renovated mall. I was kind of dreading it since it's shopping season and it was around 5pm but it actually wasn't bad at all. We were really impressed with the new changes. I even ran into one of my old coworkers at the Louis Vuitton store. It was a pleasant surprise and we already have plans to have lunch and catch up soon :)

So while we were window shopping we noticed Santa was already doing his thing right there in the center of the mall. And what was even better....NO LINES! It was amazing. He was a very good santa, my kids were already dressed up from our portraits and did I mention that there was NO line at.all. ???? I was stoked and so was cam.

Both of the kids did great. No tears by Gabby and Cameron informed old St. Nick that he wanted a "bunny." (don't worry...we've talked about it and he only wants a stuffed bunny. Easy enough!) Santa called me over and said "mom, I am having a hard time understanding what he is telling me he wants for Christmas...it sounds like he is saying he wants some money." to which I clarified for the jolly old guy that it was, in fact, a BUNNY that he was requesting. He replied with, "hahaha...I asked him if he was going to invest that money and he told me 'YES!'" Silly Santa.

So without further adieu....



Yep...that was the best we got. Cam was tired and Gabby was staring off at every glittery thing in sight. There was absolutely NO getting her attention. They had enough photos for one day I think. But you know what? I like these types of pictures better. They crack me up. May I remind you of Cameron's soccer pic? I actually am going to start aiming for the most ridiculous pics possible. I can't wait for the Easter Bunny!

as I would say, "FRIGGIN AWESOME!"

7:55 AM Posted In 8 Comments »
I stole this from another blog I read...I am known to do this from time to time, haha. It's just too good not to share. Not quite sure why I love it so much, but I do. And please believe, that WHEN Nguyen and I travel the world, I am SO doing this. Nguyen can hold the camera.

PS: Be sure to turn my music player off before you play the video.

baking fun!

11:30 AM Posted In , 9 Comments »
Cameron and I were B.O.R.E.D. on Friday and it was pretty chilly outside, so we opted for some baking. I asked him if he wanted to make cookies or muffins and he picked cookies!

I was planning on making classic chocolate chip cookies, but then the recipe for DOUBLE chocolate chip cookies on the back of the nestle bag caught my eye. :)



Really? The camera? Whatever.

Once he saw that chocolate was involved, he perked right up. Just like his mama.

And I am a totally mean mommy. I won't let him lick the spoon or bowl. I'm not down with foodborn illness. ; )

Gabby gave us lots of good baking advice.

MMMM. They were so yummy fresh out of the oven!

Hope everyone is enjoying their Sunday!

Double Chocolate Dream Cookies

*2 1/4 cups all purpouse flour

*1/2 cup baking cocoa

*1 tsp. baking soda

*1/2 tsp. salt

*1 cup (2 sticks) butter or margerine, softened

*1 cup packed brown sugar

*3/4 cup granulated sugar

*1 tsp. vanilla extract

*2 large eggs

*2 cups semi-sweet chocolate chips

PREHEAT oven to 375*F

COMBINE flour, cocoa, baking soda, and salt in small bowl. Beat butter, brown sugar, granulated sugar and vanilla extract in large mixing bowl until creamy. Beat in eggs for about two minutes or until light and fluffy. Gradually beat in flour mixture. Stir in chocolate chips. Drop by rounded tablespoon onto ungreased cookie sheet.

BAKE for 8 to 10 minutes or until cookies are puffed. Cool on baking sheets 2 minutes; remove to wire racks to cool completely.

friday ramblings...

8:29 AM Posted In 7 Comments »
*Tonight I get to go see Twilight with my girls. I am so excited. Although, it's not getting the greatest reviews...I am sure I will still like it :)

*I really want to go to disneyland this year during Christmas but it's not happening. I should have planned it months ago. Bummer.

*Yesterday Cameron, Gabby, and I went on a mission to look for construction vehicles in action. This is one of cameron's many obsessions. We didn't find any tractors, but we did run into thousands of people parked on the side of the freeway waiting for the memorial parade for a fallen officer. So, I decided we should do the same, and pull over. It was amazing. When they finally made their way to us, it took about 30 minutes for all of the police vehicles to pass (and they were on the FREEWAY.) Cameron loved it and it was so touching to watch.

*Thanksgiving is less than a week away. How did that happen?

*The electrical system in my house sucks. I called an electrician two days ago and he never called me back. Jerk.

*I just realized that since next week is Thanksgiving, that means Cameron is off from school. I guess I better start planning some activities to keep him busy :)

*Gabby didn't fall asleep until almost nine o'clock last night. She is usually asleep by 7:15. I wonder what was up?

okay...that's enough boring rambling from me. Hopefully I will have some pics to post tomorrow from tonights charades!

Have a great weekend!

I've been tagged again!

7:00 AM Posted In 8 Comments »
But this one is different and simple :)





RULES:





1. Go to your pictures


2. Upload the 4th picture of the 4th folder


3. Post it


4. Tag 4 friends




Me and my ladies on my wedding day.
xoxo
I'm tagging:
and

back to our routine.

8:21 PM Posted In , , 8 Comments »
Today Cameron returned to school after missing all of last week. At first, he was reluctant to get ready this morning, but after I assured him of how much his teachers and friends missed him, he agreed that he should go, if not for me, for his peers ;)


Gabby and I decided to get out of the house so we went and did a little bit of window shopping. When we returned, Nguyen was huffing and puffing in the garage trying to put together some new piece of fitness equipment. I was barely out of my car before I was recruited to help. I despise putting things together, and judging by the millions of pieces of fitness equipment strung all over my garage floor, I would say Nguyen does too.



When I went to pick up Cam from school, he was sitting in one of the assistant teacher's lap during circle time. He immediately started bawling when he saw me...something he hasn't done in quite a while. Apparently he had a rough day. He told me "I tripped today and hit the table mom." The teachers informed me of this too. Not surprsing given his clumsiness. He is such an



oaf. But all was good...he said "my teacher gave me ice like your ice mom." Goofball.



After I picked up the little man, we all went out to lunch at dos coyotes. Yum-O. This was followed by a trip home for naps, and then the outlets...our new favorite hangout. We didn't stay long though since it gets dark so early now. I ended up coming home with a baster and a basting brush for turkey day. :)





I can't remember if I talked about this on my last post or not, but I recently made the mistake of building Cameron a "fort" in our living room using blankets and pillows. As I was first building it I was thinking to myself that it was probably a mistake. It was. It's apparently not possible to be in the living room UNLESS you are in a fort. What have I done?! Oh well...he loves it!

Hope everyone had a great day!




peas!

3:44 PM Posted In , 9 Comments »
We're all on the mend it seems, thank GOODNESS. Gabby was feverish the first day, but other than that she's been fine, just a tad congested. No biggie. On to the exciting news...
Since the princess did so well with butternut squash for the past few days, we've moved on to bigger and better things. On the menu today: PEAS!
She looked a little apprehensive.


When Cameron saw the green sludge in the bowl, he decided to be there for Gabs for moral support. Surely this substance couldn't be anything short of terrible. It was kind of like when she goes in to get her shots and he get's to tag along. He feels bad for her pain. but he is secretly thrilled to be watching the drama unfold. Look at that smile.



First bite went down smooth. A little too smooth. And then it was followed by a smile which, once again, could not be caught on camera. :(



She ended up LOVING the peas. Moreso than the squash which was surprising to me. She ate the entire bowl. I am a happy mama.
I think Cameron was a little dissapointed that she so graciously accepted her new meal. I am pretty sure he was hoping for her to put up more of a fight, haha.

That was our excitement for the day. Hope you all had more of an interesting day than we did!

P.S. Why is it 80 degrees in mid November? Weird.

100th post!

4:01 PM Posted In , , 8 Comments »
This is my one-HUNDREDTH post since May! How exciting! :)

I am feeling a LOT better than I was yesterday and I can even smell gabby's stinky diapers again (hooray) and I can taste my food too! I am pretty ecstatic.


Gabby seems to be fine today other than a little bit of snot. But no fever or cough or anything, so I will continue to keep my fingers crossed that it doesn't get any worse.

We went out this morning and almost finished up our Christmas shopping. I am glad too, because toys r us was already packed with holiday shoppers. I'd love to avoid the holiday crowds so I am trying to get everything done within the next couple of weeks.


That was about all we did that was fun. I have been trying to catch up on some laundry. While I was in Gab's room folding some clothes I was admiring her new quilt my mom made her. It matches Cameron's that was made by my great aunt and cousin, and my quilt that was made by my great grandma. My mom also has a quilt somewhere but she doesn't know where it is...but I'm guessing it looks something like mine ;)

Cameron's


Gabby's


Mine





Pretty cute huh?! I love them. :)

And here are some cute pics of my babies today.





Hope everyone is enjoying their weekend!

still not zesty.

12:07 PM Posted In , , , 5 Comments »
So, we're still under the weather (cameron and I) and it seems as if the princess is following suit. This morning she felt a bit warm and just didn't look well. Her eyes are watery and she is definitely congested. I gave her some tylenol and we're just praying it doesn't turn into anything nasty. Currently she is lounging in her swing not making a peep, so I'll take that as a good sign.

So since we've been cooped up in the house, Cameron has TORN the place apart...literally. I cannot turn my back for even five seconds because this is what happens.






I'm not kidding...this is his newest most favorite thing to do. Take all blankets, pillows, couch cusions, towels out of the closet, sheets, etc...and THROW them about, everywhere. And with me not feeling my best, I don't have the energy to keep picking it all up so I either get really upset with him and he goes on timeout, or I just lay down and pretend I don't notice. The poor kid is going stir crazy and so am I.
On another note, guess who got their first taste of butternut squash yesterday?!


She LOVED it. We tried rice cereal first but it wasn't kind to her digestive system so her doc gave us the go-ahead to start with veggies. I have never seen anyone so happy about consuming pureed squash! I couldn't catch the smiles she was shooting me after every spoonful, but I assure you, they were there!


Sorry if these pics gross you out...I know I get grossed out sometimes when I see pics of other people's children with crap all over their face, but I dunno...it's different with your own I guess?!

We had family portraits scheduled for today but since Gabby is not feeling well, I canceled. We rescheduled for next week so hopefully we will all be feeling much better!
Hope everyone has a great weekend!

just wanted to say....

8:08 PM Posted In , 7 Comments »
that there is a major glitch somewhere with blogger. If you are a fellow blog buddy of mine and you no longer see your name on the right hand side under "my blog list" or whatever it says, please know that I did not delete you. For whatever reason, blogs are dissappearing. Then I go and re-enter in the ones that I notice have disappeared and they show up momentarily, and then vanish once again.

I am upset because there was a few blogs I was following with every update and now I am not seeing them : (

Just know I didn't forget about you! (ie: cori, jennifer (with baby joaquin) aunt kim, etc.)

I need to figure out what the deal is. Blog love to you all :)

oh my sick.

12:15 PM Posted In , 11 Comments »
I am pretty much miserable and also quite terrified that whatever germs have invaded mine and Cameron's bodies will do the same to the princess. That will break my heart, because I just can't imagine Gabs feeling like I feel this very second. GROSS.


As it stands, she is crying in her swing and I need to figure out how to entertain her without having much contact with her. She can only jump in the jumperoo and swing for so many hours during the day, know what I mean? Poor baby. :(



And my poor sweet boy is exhausted but just can't get the rest he needs with this horrid wet cough. Nguyen has somehow avoided this one, but he shouldn't hold his breath...er, maybe he should actually! Inhaling around us sickies would not be a good plan.



I went and got a massage last night and it was so gross...not a good plan when you have a cold. You know how you're face down with your face in that cradle thing..um, yeah. My nose was dripping like a faucet. DISGUSTING. Sorry if that was TMI. ; )


So anyway, I have nothing better to do than complain about how miserable I am so I'll stop now. Here's some cute pics!





Happy half-birthday Gabby!

8:34 PM Posted In , 11 Comments »
I can't believe it's already been a half of a year since the princess made her debut!

fun stuff!

4:21 PM Posted In 7 Comments »

I mentioned in my last post that my dad and family have been staying with us for the past few days and I finally got around to uploading the pics.
This was shortly after their arrival...Chad, Connor, and Cameron playing.

The first day they got there, everyone was expectedly exhausted but that did not prevent the kids from partying like rockstars. I think they slept fairly well that first night ; )


My baby sister getting ready for bed. Isn't she pretty?!!






Cameron thought it was so cool that he had friends spending the night at our house. He was downright giddy.


Cam had good intentions. He was going to attempt sleeping in his room with Chad and Emily. After I gave everyone goodnight kisses and walked out, it was maybe a minute and thirty seconds before he was out of bed asking to sleep in my bed. Stinker.


Chad pretending to sleep. Emily was over it.



My baby brother Connor...just being cute.



I love this picture. Gabby and Emily having morning conversation.


LOVE.


On Friday, I had the kids all to myself for a couple of hours so we made sugar cookies!

Em picked the snowflake!

Cameron chose the Christmas Tree!


And Chad went with the Candy Cane!


Unfortunately, the kids had to go visit more family so they never got a chance to decorate their cookies. Cameron and I took the liberty of doing it for them so they would have a yummy treat on the plane ride back home.
We had a blast getting to see everyone. Cameron is already pumped up about the next time we get to see eachother, which will hopefully be sooner rather than later!
OH YEAH...We had family pics done while they were here, but I will share those on
Wordless Wednesday!
Hope everyone had a fabulous weekend!

peace.

messing around with layers in PS.

11:20 PM Posted In , 11 Comments »

Nothing fancy...just thought it turned out cute. I am hoping one day, I can make some Phamily Christmas cards :)


Oh an by the way...i'm feeling a lot less "funk-ish" this evening. I kept off of the computer for the most part and avoided all of the "dangerous" sites, and I must say...it was a good day.

We have been busy over here at the pham house. My dad and family have been staying with us for the past few days so we have been having too much fun with them. I should have some pics up tomorrow!

Hope everyone had a lovely day!

a funk.

11:04 PM Posted In ,
is what I'm in.

I have always been a sensitive person.

It seems now that I have this voice through my little ole' blog, the sensitiveness is eating me alive. Because if I know anything now, I know that some people don't want to hear your voice. Unless your voice is similar to theirs, you better keep it to yourself. It's true...I can admit it myself...i'm guilty.

So yeah...this is my blog. This is where I vent. Where I can come and just type. Where I don't have to read about what everyone else is thinking,feeling,wishing,hoping,etc. It's all me over here. I get to be selfish, and it doesn't matter...er, wait...

I can be the peacemaker that I always try to be or I can let loose and tell you how I REALLY feel. The peacemaker thing isn't really working out for me anymore. I hate conflict, so I try to fix it. I don't like pessimists, so I try ot be an optimist. But then the pessimists attack the optimists and infect me with their poison, and then I get pissed off.

I am sick of it all. I can't go to myspace anymore because people are wanting to jump off of bridges because our country is in ruins. I can't go to facebook because, people are jumping over there too. Everyone seems to be in this funk, but it seems no one really wants to get out of it. And I can't try and correct the situation either because apparently, that would be hypocritical of me. I can't say "is it really THAT bad?" because then I get "you were saying the same thing for the past eight years." Was I? As far as I know, I have been pretty happy for a while now.

And really, I can't come here to my little haven either because I am reminded of all of the readers I've lost. And then of course because people will decide to comment on MY posts, telling me why it is that I suck so bad. I suppose I could make my blog private, but what's the fun in that? It's a lose/lose situation.

"WOE IS ME." For reals.

I just wanted to get all of that out. Thanks for listening. And just because I am an internet gangster and I am pretending that I don't care what you think...i'm not allowing comments.

I am a badass.

I finally uploaded these pics.

7:00 AM Posted In , , , 20 Comments »
so I thought I would share, even though they're a couple of weeks old now.
This seems to be our (the BFF's and me) new hangout.
It's a really old dessert diner. SO fun...and it is open way late so we get to hang out and chat until the wee hours of the morning ; ) Fun stuff!



This was the night that Jenny was supposed to surprise the girls. She has been living in Tennessee attending med school (have I mentioned how proud I am of her?)
But anyway, she was supposed to keep it a surprise and then show up for dinner one night, but she couldn't contain her excitement and ended up surprising Tiff earlier than planned.


Tiff

so while Lauren (who still didn't know about Jenny) was on her way, Tiff and I found a seat in the diner, while Jenny and her sister got a booth directly behind us with their backs facing us. Lauren finally arrived and sat down. Eventually, jenny and her sister started messing with Lauren's hair and Lauren turned around to give them a piece of her mind when she recognized that familiar face! It was a fun moment!! :)


We spent the rest of the evening catching up while eating way too many delicious things.



yummy.


Tiff, Lauren, and Amanda

Eventually, Jenny's jetlag caught up to her and she had to get home due to lack of sleep.
We had a great time and can't wait to go back to the diner for more!!