Ever since Gabby's diagnosis, we have been dealing with the Regional Center. They have provided us with valuable resources, and have also referred us to our wonderful Early Intervention team through the county of Education.
Good. Great. Except my service coordinator is a mean, mean lady. The frst time I met her (she came to my house) I chalked it up to her having a bad day or something. Since that day, I have probably talked to her a total of three times maximum and she has been just as pleasant each time (I hope you read that to yourself in a sarcastic tone.) Anyway, she stayed true to form when I called today to inquire about
respite care.
Respite care is one of the wonderful benefits that our regional center offers. I really didn't know how it worked, but after talking to a few other families who have used it, I thought it would be nice for us as well. So I called my coordinator.
After I got off of the phone with her, I felt like a complete scumbag or something. She belittled me, like she
always does. EVERY time I call this woman she makes me feel like *I* am trying to cheat the system or something...milk them for everything they offer. Yes Gabby receives therapies, and yes she receives her formula through them (which BY THE WAY,
she did not inform me of, the Sacramento County of Education let me in on that little secret) But it's not like Gabby is in EVERY therapy they offer...she does physical therapy once every two weeks. Period. End of story. A lot of kids receive therapy more than twice a week. I could be asking for A LOT more, but I am not doing that just yet...I will eventually though. Who wouldn't want the most for their children?!
Anyway, when I was asking her about it, she immediately goes on the defensive saying things like, "this is in no way DAYCARE for your child." I was dumbfounded. At first I thought she must have taken my tone wrong, so I tried reminding her again that I was merely inquiring about what it was..not that I necessarily wanted it at this time. She then goes on to say that Respite care is only for use when a family is going through a "HIGHLY stressful situation."
???
So then I ask her, "okay, so what would you consider a 'highly stressful situation'? Would that be like after Gabby has her open heart surgery...would this be considered 'highly stressful'? To which she replied, "I don't understand what you are asking."
So I tried to word it differently. "What type of situation would be considered 'highly stressful'?
Silence...
"Well, say you have just HAD it. Say you just NEED to get out of the house for a couple of hours and go shopping. THEN, you could use respite."
OOOOOOhhhhhhh! I get it...so pretty much every second of every day of my life qualifies for respite. Got it. (No I didn't say this...I was in a bit of shock still.)
She continues with, "you know, when people plan for a child, they usually also plan for daycare...we're not here to pick up the slack where parents forget to." What the EFF?!!! By this point, I am losing my mind but somehow, some way , I managed to keep my cool. I bluntly replied with, "yeah,I get it...and I hope YOU realize, *I* am not trying to get free daycare out of you. I was honestly just inquiring about it...I wasn't quite sure how it works, so I thought I would ask. I am NOT here to cheat the system and take advantage of the regional center." And then she chilled out a little bit, but still...I was VERY upset.
So after thinking about it for a little while, I realized this woman needs to find a new occupation. I am sick of her acting like this over EVERYTHING. She put up a fuss over the formula too, but after jumping through a thousand and one hoops, we ended up getting it. I am done with the whole hoop jumping business. So I called her supervisor (who was away from her desk) and left a message asking her to call me back. I am requesting a new coordinator.
I just don't understand why she acts like this. Is it just me, or is it every family? I wonder if there are other beneficial programs out there she purposely is not mentioning. It seems to me that people in this proffession are usually in it because it is a highly rewarding job and they want to help others. This woman seems to think the complete opposite. I am thinking she needs a new job. I think she would fit in well at the DMV or the airport or the post office. You know, where the kindest, most sincere and helpful people work. (I am still terrified of ALL of these places. I am scared of bullies.)
Okay, I feel better...hopefully we will be assigned a new coordinator this week. I'll keep you all posted.